NF HOPE CONCERT HITS A NEW STAGE AND EMBRACES AN INTIMATE VIBE FOR THE 9th ANNUAL CELEBRATION TO RAISE AWARENESS FOR NEUROFIBROMATOSIS
Former “Jersey Boys” Star Jeff Leibow Moves Annual Event to Myron’s Cabaret Jazz at The Smith Center for the Performing Arts on Sunday, Oct. 6
Las Vegas' most prominent entertainers, music lovers and philanthropists will join forces against neurofibromatosis at the 9th Annual NF Hope Concert. In store for 2019, benefit organizers Jeff Leibow, formerly of “Jersey Boys,” and his wife Melody, have decided to embrace a more intimate vibe for the 9th year of the annual Vegas tradition. For the first time ever, the 2019 NF Hope Concert makes its home at the prestigious Myron’s Cabaret Jazz at The Smith Center for the Performing Arts on Sunday Oct. 6. The lobby opens at 12:30 p.m. for silent auction viewing, with the entertainment portion of the afternoon beginning at 2 p.m. Tickets start at $49 and can be purchased at The Smith Center box office or online at www.thesmithcenter.com. A limited number of VIP tickets are available by emailing firstname.lastname@example.org. The event benefits Neurofibromatosis Network, an organization dedicated to families and individuals suffering from Neurofibromatosis (NF).
Since the inaugural event in 2011, the “NF Hope Concert” has grown by leaps and bounds, with more than $750,000 raised for Neurofibromatosis research and advocacy and growing to three cities – Las Vegas, New York City and Chicago. “Sometimes you feel helpless as a parent because you can’t take this away from your child, so we created a concert that could give back to her and all the other Neurofibromatosis warriors,” said Melody Leibow. This year’s all-star lineup includes Chadwick Johnson, Ashley Fuller, Heidi Webster and Vegas newcomer Jimmy Kilduff, along with Jeff and Melody Leibow with a special guest appearance by daughter Emma, as well as some surprise guests. The 10th anniversary of NF Hope Concert will take place in October 2020 with a bigger, bolder and brighter event to celebrate passing the $1 million mark in fundraising for the organization.
Neurofibromatosis (NF) is a genetic disorder of the nervous system characterized by tumors that can grow on any nerve in the body without warning. Leibow’s young daughter, Emma, was diagnosed with this condition in 2010 when she was just nine months old. As Leibow and his wife, Melody, learned more about the disorder’s devastating effects, they conceived the idea for the concert with the realization that they had an obligation to both their family and the 128,000 people living with NF to educate others about the disorder. 2019 has been a difficult year for the family with Emma undergoing the second of what will likely be five surgeries necessitated by a tumor in her leg. Although it is a common genetic disorder, most people are not aware that one in 2,500 people are born with it making it more common than cystic fibrosis, hereditary muscular dystrophy, Huntington’s disease, and Tay Sachs combined.
Every year, Emma supplies endless optimism and encouragement for Leibow and his wife, filling them with the inspiration needed to make this event a success. “Knowing that there’s nothing we can do to take this away from Emma is the most challenging part of this journey,” said Jeff Leibow. “This challenge, however, makes the generosity and kindness from friends and patrons all the more poignant and sweet.” Later this year, Emma will have to face two more MRIs (No. 18 & No. 19 in only 10 years of life) to monitor the growth of the massive tumor in her leg and the new brain tumor doctors discovered late last year. “Watching NF affect Emma like this is heartbreaking,” said Leibow, “and it is why we will continue fighting for her and the NF community and won’t stop until there is a cure.”
Tickets start at $49 and can be purchased at any box office at The Smith Center for the Performing Arts, online at www.thesmithcenter.com, or by calling 702-749-2000 (TTY 800-326-6868). A select number of sponsorships are available. Sponsors include ad space in the annual Tribute Journal, sponsor recognition and prime seating at the October 6 concert. For more information about becoming a sponsor, email email@example.com. The NF Hope Concert also features a lavish silent auction including priceless experiences, ticket packages to the top shows on the Strip, hotel stay packages, celebrity experiences, Broadway experiences, restaurant gift certificates, spa certificates, and more. Access to the silent auction begins Monday, September 30 via nfhopelv19.givesmart.com. The auction will open for viewing 12:30. on the day of the event. For more information on NF Hope, visit www.nfhope.org. You can follow NF hope on Facebook, Twitter and Instagram.
The 2019 NF Hope Concert is sponsored by All Western Mortgage, Las Vegas Sans Corporation/Sands Cares, Mondays Dark, and Findlay Toyota.